Sara's CJD journey

Monday, October 12, 2009





Sara's Memorial service was beautiful. We were blessed with a weeks long clear, breezy and mild late fall weather at the Pacific Ocean's North Oregon Seashore.



The Cannon Beach Community Presbyterian Church was filled with the uplifting and optimistic sounds of Ragtime piano music played by a local Franz Schubert scholar, Jennifer Goodenberger . Pastor David Robinson delivered a sermon on the promise of God's love by referencing a passage from Issiah 41:10



So do not fear, for I am with you; do not be dismayed, for I am your God.



I will strengthen you and help you; I will uphold you with my righteous right hand





Pastor David expounded on some research he had done on Sara's career, and quoted from a speech she had given where she encouraged the hopefulness those in the criminal justice communitity must necessarily draw on to be effective in their professional endeavors.



Pastor David invited Sara's Brother Bill Tullar to read a passage from the book of John, chapter 20 which he read beautifully and concluded by saying it was the promise contained in those words that will reward us by seeing Sara one day again.




Sara's son, Dave read some memories he'd compiled of his and Sonia childhood, mostly humorous and entirely sincere.

Sara's good friend Pam Gratzer spoke about her love for Sara, she read from a Memorial Scholarship Award Sara's co-workers have established in her honor, and read a poem written by their mutual friend Rhonda Brown.

We were treated to a wonderful multi-media slideshow created by Gina Jones and Theresa Willard (I will try to include a link to it here).

The Memorial concluded with a reception in the meeting area where we enjojed eating some of Sara's favorite cheeses.





Saturday, September 19, 2009

Sara's Memorial.

I'd like to share information regarding Sara's Memorial.

On Saturday, October 3 2009 at 11am we will gather at the Cannon Beach Presbyterian church to remember Sara Fasoldt's live and spirit.

A reception will follow the service in the community room of the church and will end around 2:30pm.

A banquet dinner will be served at the Elks Club in Seaside and will begin at 4:30pm. Every person is welcome to the memorial, reception and banquet.

If you'd like to RSVP, if you'd like specific information or if you'd like to speak to Dave Fasoldt, please call me at (206) 941 8737.

On Sunday, October 4th the extended family and select guests are invited to gather at the "River House" for a brunch and gathering starting at 11am.

Tuesday, August 4, 2009

Sara's Memorial Service: October 3rd at 11am

We will be gathering in memory of Sara at the Community Presbyterian Church in Cannon Beach, Oregon for a memorial service at 11am on Saturday October 3rd, 2009. Everyone is welcome.

The address is:
132 E Washington St
Cannon Beach, OR 97110
http://maps.google.com/maps?hl=en&q=community%20presbyterian%20church%20cannon%20beach&um=1&ie=UTF-8&sa=N&tab=wl



Getting to Cannon Beach:
Fly to Portland, Oregon and rent a car. Cannon Beach is approximately a two hour drive to the West over a low mountain pass from Portland. Some may want to stay in one of the several hotels near the Portland airport, however there are many hotels in Seaside which is a 10 minute drive North up the coast, as well as a few in Cannon Beach. A reception will follow the Memorial Service in the reception hall of the church.

The weather in early October on the coast will be cloudy and chilly, with a possibility of rain.

If you'd like help with information about traveling to Cannon Beach, please contact Dave Fasoldt at (206) 941-8737.

Tuesday, July 28, 2009

The Newspaper's Notice

Here's the text Sonia and Dave are submitting to the newspapers in the cities Sara spent many years living in, amassing great numbers of friends in and leaving lasting bonds with.

The Democrat and Chroncle in Rochester, NY
The Press-Republican in Plattsburgh, NY
The Times-Union in Albany, NY
The Daily Astorian in Astoria, OR
The Seaside Signal in Seaside, OR


Sara Tullar Fasoldt has died at age 63. This remarkable person will be missed and remembered by the communities of people with whom she shared her unique and vibrant personality. Sara made endearing friendships throughout the distinguished chapters of her life, from her early years as young mother, through the vertical arc of a career in public service, and during her blossoming but brief endeavors post early-retirement. Sara’s life was a tapestry of friends from divergent, unrelated and trans-continental locations, with Sara’s enthusiasm for tomorrow the bond that connected those who will always love her. Those of us who are so blessed to be her surviving family invite you to remember her as we do; a highly-capable pragmatic achiever, a role-model. We will memorialize Sara in Cannon Beach, Oregon at the Community Presbyterian Church on October 3, 2009. Donations in Sara’s memory to community Women’s Shelters are welcome.

Sunday, July 26, 2009

July 26, 2009

Sara passed away this evening.

Sonia and I and our families thank all of you who love her as we do. We thank you for your expressions of concern, for your prayers and for your words of consolation.

When we have formulated the plans to memorialze her, we'll share notice of the events here.

Saturday, July 25, 2009

My brother is my hero

My brother is my hero. I haven't been very capable over the past 3 months. I give myself the excuse that I was in my third trimester when mom started showing the signs of CJD and therefore can be excused of my emotional state and my physical capabilities, but it doesn't really matter why. I think I *could* have dealt with this all if I HAD to - as in, if Dave hadn't done it I would have - but, and I'm POSITIVE of this, not nearly as well as Dave has.

I suppose we get to know ourselves in times like these, and we get to see other people in brighter lights than we usually see them. Dave really has been all that he needs to be plus some in this horrible situation.

He truly is my hero.

Friday, July 24, 2009

No5

.





One of the items Sonia added to the transfer stash back in late May was an embroidered pillow that reads "It's Good to be Queen". That little pillow has been so handy in the endeavor of making Mom comfortable. It stuffs just right in the crook of the arm, in the nape of the neck, at the wedge of the lumbar.






Our Mother, Sara Fasoldt is our Queen.






The scent of our Queen is Chanel Number 5. We're runing out of comfort measures that can add value to Mom's deteriorating health. She's stopped swallowing as of the past week-end. I've been assured she's not in pain and that her sentience has retired. I'm not so sure she can understand us when we read to her, but we do. I'm not so sure that she can feel us hold her hand and kiss her face, but we do. And I'm not at all sure she can process the scent of the perfume we anoint her with- that part for sure is for us.






Our Queen is worth it.

Wednesday, July 22, 2009

Lady Godiva



When Sonia and I were in our early teens we'd sometimes be invited along with Mom to her bosses' house for an evening of dinner and stories. Jeanette and Sam were wonderful hosts, their children were already adults and their small appartment was filled with the exotic fragrances of an unfamillar culture. Sam's thick accent sounded to us like he was raised in Brooklyn, not his native Ukraine. Sam drove a purple Lincoln that he called Abe that he may or may not have won in a poker game. Mom's boss from the Probation Department- Jeanette served us borscht and stew meat with sour cream and souerkraut, and always Godiva chocolates from a gigantic gold foil box. I remember being invited to take only one and how challenging it was to survey the treasure trove of tempting chocolates- trying to imagine which shapes held which flavorful reward, and select the one to commit my taste buds to.


Mom saved some kind of treasures in one of those gold foil boxes, maybe Sonia will remember what it was, maybe pictures- maybe buttons. I can't recall. I'm distracted right now for lots of reasons but mostly I'm resisting making the box-of-chocolates-to-life analogy, not just because it's cliche- which it is. But mostly because it's too simple. We get the chocolates- all of them, and when we're done eating them at whatever pace we happen to be aware of in retrospect, we get the box too. And if we're lucky we can enjoy the use of the box just as much as when we ate- or gave-away the candy.
I'm also not remembering how long Mom had collected elephant paraphernalia- Sonia may also recall this fact as well. Today Nancy and I went to lunch at a neighborhood Thai restaurant and this carving greeted us at the entrance. I like how the trunks meet to form a heart shape.




Sunday, July 19, 2009

More Pictures From Max Visits His Nana







Max visits his Nana


Max needed to meet his Nana, so today I took my cousin Amy, her husband Don, Aaron and little Max over for a quick visit. Mom had a nice spark of recognition for Amy, which made me happy. She was awake for most of the hour-long visit and although she didn't seem to take any notice of Max being there, it was so good to have him be in her presence. I believe a 4 day old baby can probably get more into touch with her than we can.

I'm glad to not be pregnant anymore - I'll at least be able to be there with her more often once I'm allowed to drive again. Max is a patient, easy baby, so I'm sure he won't mind hanging out at her home with me.


Friday, July 17, 2009

Talking About the Present


Today we strolled through dappled sunshine on a hot Seattle summer day. Nancy blazed a path down the sidewalk through trespassing lavender blossoms thick with pollen-laden bumble bees. Mom's freshly lavished lotion scent blended with the bluster of brushed-aside fragrance. The chair wheels crushed through the minefield of deposed cherries- it's almost what Nancy and I call "free fruit season". Pears, plums, apples and grapes, blackberries and blueberries are almost nuisance issues for gardens and pedestrians. Neighbors fill paper grocery bags with tree fruit and deposit them on one another's doorstep in equal gestures of altruistic goodwill and self-conscious landscape hygiene. One can only eat so many plums from the icebox that you were saving for breakfast. Forgive me, they were delicious, so sweet, so cold*.


Somehow I've been able to make the managing of Mom's affairs, her care oversight and the guardianship of her dignity my full-time job. It's an opportunity that has been a gift in large part due to the dynamic competency and the corresponding sacrifices of both Nancy and Sonia.


Thank you, my loves. Your strength magnifies the Glory I seek for the strength and wisdom I need now.


*Thank you William Carlos Williams

Thursday, July 16, 2009

Grandchild Number Six

The number of wonderful people who are blessed to call Sara by the esteemed title of Grandmother has grown to a total of six today by the addition of Maximillian Seydlitz, born to Sonia and Aaron today at 9 am-something in Kirkland, Washington.
Sonia is feeling crappy, but happy.


Grayce; age 20, Holly; age 17, Ben; age 15, Porter; age 14 and Chloe; age 12 welcome into the Blessed Order of GrandMaternal Progeny: 8 pound-ish Max; age 5 hours


Wednesday, July 15, 2009


Thanks for the comments, they're an insight into Mom's sphere of influence and to the reach of her love. I'll print them all out and read them to her tomorrow.


Monday, July 13, 2009

Talking Book







We were encouraged to assemble a "Memory Book" for Mom to help prompt recollections of events, people and experiences. Before we moved Mom to her new residence, Sonia, Nancy and I brainstormed what furniture Mom would be needing and what special mementos we'd need to bring to Seattle. I packed-up Sonia's mini-van with some furniture and clothes to take to Seattle so she and Nancy could arrange the room in advance of Mom's arrival. The furniture and clothes were easy to select, the treasures, not so easy. I had amassed a pile of keepsake things for Sonia to transport and before she left she filtered through the items I had set aside, added some things I had overlooked and when she was done we had a thoughtfully archived collection of loose pictures, framed pictures, scrapbooks- even a newspaper edition from Plattsburgh with a front page article reporting about her promotion. All these mementos got packed-up, as well as a manila envelope full of the cards and letters from Loved-ones.

When Mom got moved-in, I started to assemble the "Memory Book". It's a red three-ringed binder with the cards and letters taped to individual sheets of cardstock.






I remarked today how often the image of the butterfly was incorporated into a card that communicated a solace toward grief. Maybe card designers are aware of the metaphorical symbolism of the metamorphosis embodied in the life-cycle of the butterfly and are drawing attention to a parallel with whatever transformation occurs in the spirit when someone is dying.


Wednesday, July 8, 2009

Music, Spanish and a Puzzle

It just seemed so much that Mom was in pain the other evening. Her muscles were clenched, her face in grimace, her body jerking. One of the caregivers attending Mom asked me if I would please go home, I didn't need to be seeing Mom like that, she said. I wanted to help, so I called Hospice. The nurse relayed to me that rather than experiencing the type of pain we might associate with trauma, Mom was having a kind of seizure. It was cold comfort.

I reported back to Mnembre, the caregiver what I had been told. In her thick East African accent she asked: "This life, David- what has it's meaning?"

When I got home that evening the song Guantanmera was running through my head. The spot where Mom (is sat) is near the CD player, and I've been playing the houses' music library for her. Mom sang songs in German, she sang the Hebrew words to Hava Nagila, and she knew the words to Guantanamera. I looked up the translation tonight, it's a delightful and pragmatic sentiment:


Yo soy un hombre sincero
De donde crece la palma
Y antes de morirme quiero
Echar mis versos del alma
Guantanamera, guajira, Guantanamera

I am an honest man
From where the palm tree grows
And before dying I want
To share the verses of my soul.

Mi verso es de un verde claro
Y de un carmín encendido
Mi verso es de un ciervo herido
Que busca en el monte amparo
Guantanamera, guajira, Guantanamera

My verse is light green
And it is flaming crimson
My verse is a wounded deer
Who seeks refuge in the woods.


Cultivo una rosa blanca
En julio como en enero
Para el amigo sincero
Que me da su mano franca
Guantanamera, guajira Guantanamera

I cultivate a white rose
In July as in January
For the sincere friend
Who gives me his honest hand.


Y para el cruel que me arranca
El corazon con que vivo
Cardo ni ortiga cultivo
Cultivo la rosa blanca
Guantanamera, guajira Guantanamera

And for the cruel one who would tear out
this heart with which I live
I do not cultivate nettles nor thistles
I cultivate a white rose


Con los pobres de la tierra
Quiero yo mi suerte echar
El arroyo de la sierra
Me complace más que el mar
Guantanamera, guajira Guantanamera

With the poor people of the earth
I want to share my fate
The brook of the mountains
Gives me more pleasure than the sea

Tuesday, July 7, 2009

Hospice and the CJD Helpline

My calls are returned by somber, even voices
Humane and gracious, these are grown-up people
Using grown-ups tones with genuine compassion
They seem to know the trajectory of my questions
Even if I'm stumbling in the asking. They're there.

Nurse Someone's got an affirmation for us
There's some pharmacutical something somewhere
I hear "Take it an hour at a time", and it resounds
That's a phrase I've used myself about myself, so
It must be true. It must be there, there's truth there.

Today the house had a party for a birthday for a lady
Wheelchairs and baloons, a hired musician with a ponytail
I observed the most mute resident move his lips in song
To "Happy Trails To You, Untill We Meet Again"
And again, we took that hour that time, and we left it there.

Monday, July 6, 2009

Oranges, a Sweetness so Tart


While I was living with Mom during what has turned out to be the early days of her decline, she said to me: "Eat oranges. You know, eat oranges and citrus- they'll help burn the belly fat you're amassing. It's no good to carry belly fat, Dave." I was fixing us a dinner. One of the signs I now recognize as a signal that she was "losing her marbles" (as she had put it) was not only that she had been forgetting to eat, but that she had made no real effort to cook for me while I was checking-in on her back in early May. Mom would almost always be planning the next meal. If she hadn't been soliciting a request for the next night's supper while we were eating tonight's meal, she had something brewing in the crockpot in the morning while cooking up breakfast.

Lots of times I'd ask for a salad. A request for salad would sometimes get me a roast, broiled asparagus and brown rice. Mom knew healthy eating. Mom loved oranges.



I've met lots of the families that visit loved ones who share Mom's Adult Family Home. Today I visited with Lois's husband Myron. Lois and Mom would share lots of fundamental connectivity; they were both professional women, each of them with similarly advanced educational accomplishments and each from New York State. Neither women any longer have an ability to communicate in the convention of language, but hold in ephemeral reserve a connection through those who love them. Myron and I talked in reverent witness to our loved ones lives in action. Maybe they might not have been fast friends, but colleagues indeed no doubt. They would certainly have respected one another's status and maybe even have shared professional contacts. They might have even bumped-in to one another on a flight to Hawaii at one time, who knows?

Myron's Mother happens to have also achieved the same Duplicate Bridge Life Master status that Mom has. As Myron rose to leave to walk to the bus stop he mentioned purposefully- in the way that a person is entitled to after having shared personal anecdotes with a newfound soulmate- that he's 92 1/2 years old.

I'm 42 1/2.


The staff of Mom's home want to oblige her preferences for food and music and comfort. I told them she dislikes bananas, peanuts, peanut butter and cats. "Cats?" they say. "But we have many cats here!" So, I can keep the bananas at bay and the peanut products aside- but there's only so many cats I can shoo away, as for the rest I hope the staff ladies abide.

But I can eat oranges, for Mom.


Sunday, July 5, 2009

Piece of Paper

I caught a glimpse of some fluttering urban flotsam while heading home from Mom's house on my motorcycle today, an ethereal flutter of a white rectangle in my periphery- and then I registered what it might be. Sonia's address she wrote for me on a business card. I need that, so I stopped. Where I stopped was a small park at the foot of a bridge I've been by a thousand times but never visited. So today I paused. I retrieved Sonia's note and I regarded the bronze statue of the girl offering the world her origami crane, an offering of peace.

Peace to the world, peace to the busy commuters, peace to the distracted and sorrowful rider. Peace is love.



Saturday, July 4, 2009

Fruit Crisp on the Fourth


When we cleaned out mom's house, we also emptied her fridge and freezer. Nancy was sentimental about the frozen fruit mom had picked and canned in freezer bags so she saved it. Today we had a picnic at mom's house. I brought the Brats, Nancy brought a fruit crisp. Well, I brought Bratwursts for mom and I, and tofurkey dogs for Nancy, Porter and Chloe.



We were speculating that Mom knew the answers to the crossword puzzle clues, but she was just holding out on us to make us challenge ourselves. We also noted that it would be an excellent time to roll-out the Scrabble game. Mom excelled at Scrabble.



Porter sets the grill alight. Tofu dogs need to be properly cooked, afterall.



Mom got half of a Bratwurst- they were huge. Naturally, I ate her other half as well as my two halves.

Nancy made Deviled Eggs. Chicken owners find lots of ways to incorporate eggs into most meals.
Mom and I took an afterdinner stroll around the compound. Roses are in fading glory now that it's July, but their scent is sweet not only to us but to the bees who love them as much as we love eachother.


Bless us, Lord. Our world is full of the wonders of your Glory. We seek your Grace in everything we sense.

Friday, July 3, 2009

Like This and Like That


Mom's lost much of her ability to communicate with words, but just the other day Nancy was saying her good-bys for the afternoon and she said "I love you Sara". Mom responded with these four deliberately retrieved words: "I... Love.... You.... Too"
We had been listening to the Buena Vista Social Club on the CD Player.
It's like this and like that.

Tuesday, June 30, 2009

A Glass of Cranberry Juice



A simple thing happened today. Mom drank a glass of juice on her own.


Mom's been unable to tell her hands to do what she wants them to do, but today she reached-out and grabbed the juice on her own. Virginia was impressed:



Menembre was impressed as well:
I was impressed and inspired. The simple glass of cranberry juice brought me so much joy today.

It was yet another glorious Seattle summer day, so after dinner we went for a stroll around the neighborhood.


We found a "pocket park", a city lot-sized park that had been a garden and donated to the city. Mom loves this kind of civic altruism. What an awesome day it was today.